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[Zebra Club] Provide EDS-informed at-home physical therapy plans | RequestHunt

[Zebra Club] Provide EDS-informed at-home physical therapy plans

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by @u/boardbump | 1d ago | submitted by AutoCollector

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A user diagnosed with hEDS struggles to find affordable physical therapy knowledgeable about EDS. They are seeking resources for developing an EDS-informed treatment plan at home and specifically mention the "Zebra Club app" as a potential solution. The request is for the app to offer specialized, accessible physical therapy programs tailored for Ehlers-Danlos Syndrome, to help users stabilize and prevent further injuries without the high cost of in-person specialists.

Original Source

@u/boardbump | 23 pts | 1d ago

Hi folks, after years of confusion, improper care, and being brushed off, I finally got my hEDS diagnosis from a geneticist! As I had expected, she told me that the primary treatment I should be pursuing is physical therapy. I personally really enjoy PT, but the problem is that the physical therapists in my area (NYC) that are knowledgeable about EDS are extremely expensive and do not accept insurance. The person my doctor recommended will likely run me $3000 just for a couple months of treatment. If money were no issue there would be zero question, but I'm a little hesitant to spend thousands of dollars on treatment if I can find another way. Can anyone speak to the differences between going to a knowledgeable in-person PT vs. finding ways to develop an EDS informed treatment plan at home? Any resources that helped you or tips for finding a more affordable provider, or any other suggestions? I am looking into the Zebra Club app, and I would also consider buying a book (or a few) if it seems like a worthy resource. I'm generally pretty strong and would categorize myself as a milder case, but I have had a lot of injuries already and really want to do everything I can to stabilize myself so I don't continue to get worse.

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